From: Quality of dying and death desired by residents of Kagawa Prefecture, Japan: a qualitative study
8 final categories (tertiary analysis) | 19 sub-categories (secondary analysis) | 53 important items (primary analysis) | Age (years) | |||
---|---|---|---|---|---|---|
65–80 | 40–59 | 30–39 | 20–29 | |||
(1) Preparation for death | Know medical condition and life expectancy | Know the disease/condition and life expectancy | ● | ● | ||
Be prepared for and accept death | Both patient and family are accepting of death (*) | ● | ● | ● | ● | |
Family can accept death (after it occurs) | ● | ● | ● | |||
To be dead according to the thought of surrounding people (surrounding people's agree) | ● | ● | ||||
Leave thoughts in a will and testament | Do not have to worry about death | ● | ||||
Thinking about own death in daily life | ● | ● | ||||
Write the ending notes, wills, or testaments | ● | ● | ||||
(2) Satisfaction with life | To feel that one has lived until fulfilling one’s life purpose (i.e., not dying prematurely) | Not die earlier than expected (time of death must be as predicted) | ● | |||
To feel that one has lived until fulfilling one’s life purpose (i.e., not dying prematurely) (*) | ● | ● | ● | ● | ||
Having no regrets | Having no regrets (*) | ● | ● | ● | ● | |
I think I did something I wanted to do | ● | |||||
Mourning one’s/your death | Mourning one’s/your death | ● | ● | |||
A life that can be remembered even after death | ● | ● | ||||
(3) Reliable medical environment | Receiving enough treatment | Discussing end-of-life medical care to be provided | ● | |||
Receiving enough treatment | ● | ● | ||||
Participating in decisions about treatment | ● | |||||
Not being treated to prolong life | ● | ● | ||||
Being able to choose dignity in death | ● | |||||
Reliable medical environment and staff | A safe medical environment is in place | ● | ||||
Having a reliable doctor nearby | ● | |||||
(4) Good family relationship | Having family support and people around | Having someone to count on | ● | ● | ||
A person with whom you can be vulnerable will care for you until the end | ● | ● | ||||
Both patient and family consent to enough nursing care | Not being a burden to family members (*) | ● | ● | ● | ● | |
Care period is not long | ● | ● | ||||
Good relationship with family of nursing care (*) | ● | ● | ● | ● | ||
Family members can proactively provide nursing care | ● | |||||
Receiving enough nursing care | ● | ● | ● | |||
(5) Independence for oneself | Being able to do what one hoped at the end | Being able to do what one hoped at the end | ● | ● | ||
Living as usual until the end | ● | |||||
Having fun living | ● | |||||
Independence for oneself in daily activities | Eat by myself until the end | ● | ||||
Go to the bathroom by myself | ● | ● | ||||
Having intention to communicate and move until just before death | Having intention until death (consciousness/communication) | ● | ||||
Being fine until just before death | ● | |||||
Bedridden time is short | ● | ● | ||||
No dementia | ● | ● | ||||
(6) No physical and psychological distress | Being free from physical distress | Being free from physical distress (*) | ● | ● | ● | ● |
Not suffering breathing difficulties | ● | |||||
Being free from emotional distress | Not angry or complaining | ● | ||||
Being free from emotional distress (*) | ● | ● | ● | ● | ||
(7) Dying in a favorite place | Being able to stay in one’s favorite place | Being able to stay in one’s favorite place (*) | ● | ● | ● | ● |
Feel at ease in the environment | Spending time in places and with people without hesitation | ● | ||||
Spend end of life with the family | ● | |||||
Good environment around the deathbed | ● | |||||
(8) Attending the deathbed | Seeing people whom one wants to see | Seeing people whom one wants to see | ● | ● | ||
Saying important things to dear people | Expressing thanks to people | ● | ||||
The family can tell the patient what they want to say | ● | ● | ||||
Telling dear people what one wants to say | ● | ● | ||||
Family present at the deathbed | Family rushes to the deathbed (including those who live far away) | ● | ● | |||
To die surrounded by family | ● | |||||
Family present at the deathbed (*) | ● | ● | ● | ● | ||
To die unexpectedly and effortlessly | To die unexpectedly and effortlessly | ● | ● | |||
Not sudden death | ● | ● |